This little cutie is so close to having the way she lives and breathes changed forever, all thanks to all you who have loved and supported her through a heart wrenching but amazing journey, even though we are so so close we still need your help !!!
Your gift of love will be a gift that will last a life time
Hello folks. I have been doing some writing for a woman who has the most incredible story, and now her and her family need some big love.
Due to infertility issues resulting from cancer, Kylie traveled to India to realize her dream of having a family through surrogacy.
Her two baby girls, Namaeya and Hati, came into the world by caesarian section on May 10, 2013, weighing in at 2.2 lbs and 1.6 lbs. They were 12 weeks premature.
Hati has had a variety of health issues, including a tracheostomy. She has congenital varicella, causing scarring to her liver, kidney, and eyes. Although she has exceptional functional vision, she is classified as legally blind. She also has periventrical Laukomalacia.
She has spent her first two and a half years labeled as Failure to Thrive and has a gastronomy tube to feed, a tracheostomy for subglottic stenosis, epiglottic collapse, and occasional seizures. In the medical world they call her condition, complex.
Hati requires 24 hour care, frequent hospital admissions, and has undergone numerous surgeries. On a dime, she can become acutely unwell. Even a common cold can cause respiratory distress and threaten her life.
Hati has fought for every single breath, every day, for the last three years. She spent the first 6 months of her life in hospital. She was 4 months old the first time that her mom ever held her in her arms. NICU was just the start of a long, gruelling, and heart-wrenching journey that still continues today.
She has not been able to simply be a child. She cannot join playgroups, and visitors are at a minimum. Her mom, kylie doesn’t take her out to shops or on normal child outings due to risk of infection and overnight visits to family and friends are just too risky and difficult to manage.
Kylie’s life’s passion is family and her vision from the beginning has been to simply be a mom to her children and to enjoy life with them as a family. The only thing that matters to Hati’s mom and her family is getting Hati out of danger and to a life without a tracheostomy. Kylie’s heart’s desire is to see her and Namaeya running full of joy and antics with the other kids and looking forward to making their own dreams come true.
How can you help?
There is treatment available in India that would make a huge difference. It could be lifesaving, as well as see Hati tracheostomy-free.
The treatment is Stem Cell.
They have been doing Stem Cell treatment in India for over 10 years. It is a cell regeneration treatment. Hati would undergo a procedure that would include – MSC cells collected from her bone marrow and then injected into the areas of the airway that need help. She would also undergo a gastronomy tube weaning programme in an attempt to be G tube free. We would then return to Australia.
Our Little Girl Seeks BIG LOVE campaign makes that possible for Hati. Your donations, along with public sharing through social media, email, and your email contact list, can and will make that real.
This is Kylie’s family and they are strong. Hati’s spirit, Namaeya’s devotion, and Kylie’s belief in her precious family has already transcended and defied a hopeless prognosis. Her two little miracles are a shining example of how love, vision, and passion can rule over the darkness.
If there is anything you can do to support our Little Girl Seeks BIG LOVE campaign we will be forever grateful.
From our family to yours, we thank you in advance.
Mottyl's Whispers 